- Please join us for the: "Meet & Greet / Welcome" Dinner (sponsored by the 401 Project) -
@ 6:30pm on Wednesday, Sept. 23rd - Location: 8th floor conference room area
Families will be welcomed & we will be passing out "Welcome Bags", name tags & information packets for the conference then.



  *Child Care & Sibling Tours [Thursday / Friday]:
  - We are planning on having (on sight) care and activities for the MECP2 kiddos while adults attend the speaker line-ups.
  - Sibling Tours (off site) & Party (on site) - have been planned - *SEE INFORMATION BELOW!!.



* PROGRAM TOPICS TO BE COVERED ARE:

THURSDAY, Sept. 24th (AM): - Basic Science -   8:00am - breakfast - 8th Floor	THURSDAY, Sept. 24th (PM): - Current Clinical Management-   12pm - 1:00pm - Lunch	FRIDAY, Sept. 25th (AM): - Resources/Family Issues -   8:00am - breakfast - 8th Floor
• 8:45am: Introduction & Natural History Study   - Dr. Bernhard Suter   - Dr. Sarika Peters	• 1:00pm: GI/Nutrition   - Dr. Kathleen J. Motil   Nutrition and Gastroenterology for MECP2   Duplication	• 9:00am: Assistive Devices   - April Brackett   Augmentative Communication
• 9:00am: Overexpression of Methyl-CpG Binding Protein 2 Impairs Th1 Responses and Type I Immunity   - Dr. David B. Corry	• 1:30pm: PM&R   - Dr. Daniel Glaze   Achieving a Good Night's Sleep for   Parents & Their Children	• 9:30am: Navigating the Healthcare System   - Diane Murrell; Helen Murray
• 9:45am: Synaptic Plasticity   - Dr. Colleen Niswender   Metabotropic glutamate receptor 7:   a new therapeutic target for both   Rett and MECP2 Duplication syndromes   - Dr. Rocco Gogliotti   Protein synthesis dependent synaptic   plasticity in MECP2 related disorders	• 2:00pm: Sleep Medicine   - Dr. Aloysia Schwabe   Rehabilitation Considerations in MECP2   Duplication Syndrome     • 2:30pm: Pulmonary   - Dr. Marianna Sockrider   Breathing-Related Complications in MECP2  Duplication Syndrome	• 10:30am: Practical Tips for Parents   - Dr. Sherry Vinson     • 11:00am: Coping Mechanisms   - Dr. Sarika Peters
• 10:45am: Small Molecule Therapeutics  Part I - Screening   - Dr. Lauren Lombardi   Identifying druggable modulators of MECP2   levels  Part II - ASOs   - Dr. Ezequiel Sztainberg   Progress in the research of potential antisense   oligonucleotide therapy for MECP2 duplication   syndrome	• 3:00pm: Epilepsy   - Dr. Rebecca Schultz   Management of Refractory Epilepsy Syndrome     • 3:30pm: Motor   - Dr. Bernhard Suter   Motor Dysfunction in the MECP2 Duplication   Syndrome     * 4:00pm NRI Lab Tour- Dr. Zoghbi *	• 11:30am: Internet Visibility/Foundation   - Family Representatives   - Dr. Sarika Peters     • 11:50am: Wrap-Up and Future Outlook   - Dr. Bernhard Suter *Noon - 2:30pm: Focus Group Lunch w/ Survey *
• 10:45am: Fund Raising Efforts   - Collene Wright   The Van Wright Foundation	- Wine & Cheese Reception - @ 6:30pm - in the hotel Sponsored by: Pete Anderson / Collene Wright

* SIBLING TOUR INFO ~ TWO DAYS OF FUN FOR THE SIBLINGS!
COST: $40 ($31 + $9 for your child's lunch)
• For Questions:Please contact - Amy Moore: mooreamyl@sbcglobal.net

*PLEASE NOTE: WE ARE IN NEED OF CHAPERONES FOR THE SIBLING TOUR AND PARTY
to volunteer, please contact Amy Moore

• SIBLINGS' TOUR: Thursday, Sep. 24th    - 8:00am: Breakfast with families    - 8:45am: Gather & walk to Metro train Red Line    - 9:00am: Ride Metro Red Line north to Green Line connection    - 9:10am: Ride Green Line to Convention District/Astros Stadium    - 9:30am: Tour Astros Major League Baseball Minute Maid Park    - 11:00am: Walk to lunch    - 12:00pm: Ride Metro Green Line south to Red Line to Hermann Park    - 12:30pm: Museum of Natural Science and IMAX show (will stay until time       to be back for close of afternoon speakers)    - 3:30pm: Ride Metro Red line to hotel

• SIBLINGS' PARTY: Thursday, Sep. 24th    - 8:00am: Breakfast with families    - 9:00am: Roadgamers.com - game truck until 11:00    - 10:00am: Yoga with Yoginos    - 11:00am: Swim & snacks at hotel swimming pool    - 12:00pm: When speakers are finished, back to families

* To register online for the conference: Go To: MECP2 Duplication Family Conference Registration