This is Levon.

Levon is a fraternal twin and was born in August of 2009.
Levon was diagnosed with a very rare and difficult disorder called MECP2 Duplication Syndrome in February of 2012.
He is non-verbal and just recently started walking independently.

His laughter is infectious and his smile lights up a room. He is our inspiration.


This site is about our "project of love for our son" ~ which is called "Levon's Light".
"Levon's Light" will be a full length documentary about our son, his rare genetic syndrome and our mission to raise awareness to help fund - finding a treatment or cure to end MECP2 Duplication disorders.

For Levon.

• • • • • • • • • • • • • • • • 


All images and content Copyright © 2013, Project: Levon's Light.