This is Levon.
Levon is a fraternal twin and was born in August of 2009.
Levon was diagnosed with a very rare and difficult disorder called MECP2 Duplication Syndrome in February of 2012.
He is non-verbal and just recently started walking independently.
His laughter is infectious and his smile lights up a room. He is our inspiration.
This site is about our "project of love for our son" ~ which is called "Levon's Light".
"Levon's Light" will be a full length documentary about our son, his rare genetic syndrome
and our mission to raise awareness to help fund - finding a treatment
or cure to end MECP2 Duplication disorders.
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FOLLOW US ON FACEBOOK:  Levon's Light